{"id":26311,"date":"2024-03-14T17:20:21","date_gmt":"2024-03-14T21:20:21","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=26311"},"modified":"2025-12-11T08:33:41","modified_gmt":"2025-12-11T13:33:41","slug":"apoyo","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/support\/","title":{"rendered":"Apoyo"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Support<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\">Support<\/h1>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">NephCure understands that people affected by rare kidney diseases (RKD) face unique challenges, and that there aren\u2019t many options for dedicated services for this community. We are committed to making a positive impact by supporting individuals at every step of their RKD journey. Living with RKD can be complicated, but our goal is to give people the tools they need to make them feel empowered and uplifted. We want to create a sense of resilience and community that goes beyond the boundaries of conventional assistance.<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><br>NephCure is here to stand by individuals through our online community, social services, virtual support groups, and other helpful of resources. We want to make sure that no one feels alone while dealing with the difficulties of RKD. NephCure is dedicated to empowering, connecting and uplifting our community.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-2484f45d\">\n\n<figure class=\"gb-block-image gb-block-image-4bed8593\"><img loading=\"lazy\" decoding=\"async\" width=\"3840\" height=\"1580\" class=\"gb-image gb-image-4bed8593\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1.png\" alt=\"\" title=\"Curved-Image-Support-1\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1.png 3840w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-300x123.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-1024x421.png 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-768x316.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-1536x632.png 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-2048x843.png 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/Curved-Image-Support-1-18x7.png 18w\" sizes=\"auto, (max-width: 3840px) 100vw, 3840px\" \/><\/figure>\n\n<\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-70f35cee\">\n<div class=\"gb-container gb-container-0b0c93a2\">\n<div class=\"gb-container gb-container-be1ed572 image-left\">\n<div class=\"gb-container gb-container-340e9e61 animated slideInLeft left-img\">\n\n<figure class=\"gb-block-image gb-block-image-9aa6dd6a\"><img loading=\"lazy\" decoding=\"async\" width=\"902\" height=\"498\" class=\"gb-image gb-image-9aa6dd6a\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/advocacy-img.jpg\" alt=\"Two women posing by a tree representing NephCure\" title=\"Two women posing by a tree representing NephCure\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/advocacy-img.jpg 902w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/advocacy-img-300x166.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/advocacy-img-768x424.jpg 768w\" sizes=\"auto, (max-width: 902px) 100vw, 902px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-00c26c7c animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-de8c9e4d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-de8c9e4d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-378310fe gb-headline-text\">Join NephCure\u2019s Online Patient Community<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-4d7d9f80 gb-headline-text\">Ask questions, connect with others, and share experiences with those who truly understand. Our online community is here to support you in a way that&#8217;s different from regular social media \u2014 be part of a group that understands what you&#8217;re going through. Sign up now to be part of this exclusive online place for everyone affected by RKD.<\/p>\n\n\n\n<a class=\"gb-button gb-button-8f582cdf gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/online-patient-community\/\">Explore Now<\/a>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-30dc6aae image-right\">\n<div class=\"gb-container gb-container-58668973 animated fadeInLeft promo-copy-left\">\n\n<figure class=\"gb-block-image gb-block-image-76d5d608\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-76d5d608\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-8c5cfd9b gb-headline-text\">Discover Patient Navigation Services<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-57f1beaf gb-headline-text\">Designed to support individuals and families dealing with RKD, NephCure provides specialized support in helping you navigate through healthcare challenges. From managing mental health to figuring out issues with insurance, we\u2019re here for you.<\/p>\n\n\n\n<a class=\"gb-button gb-button-7a614b1b gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/patient-navigation-services\/\">Get Support<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-d0d623c0 animated slideInRight right-img\">\n\n<figure class=\"gb-block-image gb-block-image-c3b7edcf\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-c3b7edcf\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/levondosky-boys-in-the-dr.-office-alternating-columns.png\" alt=\"\" title=\"levondosky-boys-in-the-dr.-office-alternating-columns\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/levondosky-boys-in-the-dr.-office-alternating-columns.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/levondosky-boys-in-the-dr.-office-alternating-columns-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/levondosky-boys-in-the-dr.-office-alternating-columns-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/levondosky-boys-in-the-dr.-office-alternating-columns-18x10.png 18w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-d94a51db\">\n<div class=\"gb-container gb-container-c0377b85 image-left\">\n<div class=\"gb-container gb-container-90dd5f56 animated slideInLeft left-img\">\n\n<figure class=\"gb-block-image gb-block-image-4f06d047\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-4f06d047\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-2.png\" alt=\"\" title=\"alternating columns 2\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-2.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-2-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-2-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-2-18x10.png 18w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-26789e39 animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-88d91f86\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-88d91f86\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-91ec0656 gb-headline-text\">Attend a Virtual Support Group<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-aa11db14 gb-headline-text\">Designed for every stage of your RKD journey, find a safe and supportive space to connect with others who share similar challenges. Whether you&#8217;re a parent, teen, adult, or grandparent impacted by rare kidney diseases, our monthly virtual support groups provide understanding, encouragement, and a change to share experiences.<\/p>\n\n\n\n<a class=\"gb-button gb-button-5893472b gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/support-groups\/\">Join a Support Group<\/a>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-02e11ddf image-right gb-container-default\">\n<div class=\"gb-container gb-container-768eb4f1 animated fadeInLeft promo-copy-left\">\n\n<figure class=\"gb-block-image gb-block-image-c6e163cc\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-c6e163cc\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-75335cd3 gb-headline-text\">Search the Resource Hub<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-23b99ffd gb-headline-text\">Explore NephCure&#8217;s Resource Hub \u2013 your one-stop spot for helpful info! Check out resources on diet, education, FAQs, and more. Dive in and find the tools to understand your rare kidney disease journey better.<\/p>\n\n\n\n<a class=\"gb-button gb-button-768dc5c9 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/resources\/\" target=\"_blank\" rel=\"noopener noreferrer\">Discover our Resources<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-b1c7202f animated slideInRight right-img\">\n\n<figure class=\"gb-block-image gb-block-image-67b57bd7\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-67b57bd7\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-1.png\" alt=\"\" title=\"alternating columns 1\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-1.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-1-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-1-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/alternating-columns-1-18x10.png 18w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-bc0ff6c3\">\n<div class=\"gb-container gb-container-dadc96c7 gb-container-default\">\n\n<h2 class=\"gb-headline gb-headline-4cd384d0 gb-headline-text\">You Are Not Alone in Your Journey with Rare Kidney Disease.<\/h2>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-96e6df1f\">\n<div class=\"gb-grid-column gb-grid-column-43190b6b\"><div class=\"gb-container gb-container-43190b6b\">\n<div class=\"gb-container gb-container-3364a719\">\n\n<h2 class=\"gb-headline gb-headline-d3b840bd gb-headline-text\">Share Your Story<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-165d78b8 gb-headline-text\">Your story has the power to inspire hope and drive change. By sharing your experience, you can raise awareness, connect with others, and advocate for better care\u2014your story matters!<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-5fe04f4b\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/share-your-story\/\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-1225e0b4\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-42a681c4\"><div class=\"gb-container gb-container-42a681c4\">\n<div class=\"gb-container gb-container-f8c6140c\">\n\n<h2 class=\"gb-headline gb-headline-09920b2f gb-headline-text\">Explore RKD Patient Stories<\/h2>\n\n\n\n<p class=\"has-secondary-lighter-gray-color has-text-color has-link-color wp-elements-084dfb3c83b12be56b571a6243303559 wp-block-paragraph\">Listen to real stories written by people with different types of rare kidney diseases sharing their experiences and learn from those who understand the challenges you face.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-697fa7cc\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/support\/patient-stories\/\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-7f0f210c\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-c7966d90\">\n<div class=\"gb-container gb-container-4d8a4fe1\">\n\n<figure class=\"gb-block-image gb-block-image-9ab43e4d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-9ab43e4d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-afffeb92 gb-headline-text\">Find Your NephCure Specialist Today<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-14d28465 gb-headline-text\">It is important to work with a nephrologist who specializes in RKD and can provide personalized advice based on your individual health needs and changes in available treatments. NephCure has a curated list of NephCure Specialists nationwide ready to help you.<\/p>\n\n\n\n<a class=\"gb-button gb-button-98c960d9 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/managing-rkd\/find-a-specialist\/\">LEARN MORE<\/a>\n\n<\/div>\n\n\n<figure class=\"gb-block-image gb-block-image-5eb3ff4b\"><img loading=\"lazy\" decoding=\"async\" width=\"584\" height=\"583\" class=\"gb-image gb-image-5eb3ff4b\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/illustration.png\" alt=\"\" title=\"illustration\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/illustration.png 584w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/illustration-300x300.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/illustration-150x150.png 150w\" sizes=\"auto, (max-width: 584px) 100vw, 584px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-42105b23 news-letter-sec alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container gb-container-2b968bcb news-letter-field\">\n    <script type=\"text\/javascript\">\n    jQuery(document).ready(function($) {\n        const disposableDomains = [\n            'mailinator.com', 'yopmail.com', 'tempmail.com', 'guerrillamail.com',\n            'throwawaymail.com', 'fakeinbox.com', 'trashmail.com', 'sharklasers.com',\n            'tempinbox.com', '10minutemail.com'\n        ];\n        const majorProviders = [\n            'gmail.com', 'yahoo.com', 'hotmail.com', 'outlook.com',\n            'aol.com', 'icloud.com', 'protonmail.com'\n        ];\n        const suspiciousUsernames = [\n            'test', 'example', 'user', 'admin', 'info', 'mail', 'email',\n            'noreply', 'no-reply', 'donotreply', 'do-not-reply', 'fake',\n            'abc', '123', 'xyz', 'asdf', 'qwerty', 'demo', 'sample',\n            'spam', 'temp', 'dummy', 'foobar', 'anonymous', 'disposable'\n        ];\n        const keyboardPatterns = ['qwerty', 'asdfgh', 'zxcvbn', '123456'];\n\n        function isValidEmailFormat(email) {\n            const regex = \/^[^\\s@]+@[^\\s@]+\\.[^\\s@]+$\/;\n            return regex.test(email);\n        }\n\n        function hasSuspiciousPattern(username) {\n            if (suspiciousUsernames.includes(username)) return true;\n            if (username.length <= 2) return true;\n            if (\/^(.)\\1{3,}$\/.test(username)) return true;\n            for (const pattern of keyboardPatterns) {\n                if (username.includes(pattern)) return true;\n            }\n            return false;\n        }\n\n        function usernameMatchesDomain(username, domain) {\n            const domainBase = domain.split('.')[0];\n            return username === domainBase;\n        }\n\n        $('.ginput_container_email input').on('blur', function() {\n            const emailField = $(this);\n            const email = emailField.val().trim().toLowerCase();\n            const errorContainer = emailField.siblings('.validation_message');\n\n            \/\/ Clear any previous messages\n            if (errorContainer.length) errorContainer.remove();\n            emailField.removeClass('gfield_error gfield_warning');\n\n            if (email === '') return;\n\n            const username = email.substring(0, email.lastIndexOf('@'));\n            const domain = email.substring(email.lastIndexOf('@') + 1);\n\n            if (!isValidEmailFormat(email)) {\n                emailField.after('<div class=\"validation_message\">Please enter a valid email address.<\/div>');\n                emailField.addClass('gfield_error');\n                return;\n            }\n\n            if (disposableDomains.includes(domain)) {\n                emailField.after('<div class=\"validation_message\">Disposable email addresses are not allowed.<\/div>');\n                emailField.addClass('gfield_error');\n                return;\n            }\n\n            if (usernameMatchesDomain(username, domain)) {\n                emailField.after('<div class=\"validation_message\">This email looks suspicious (username matches domain). 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