{"id":26083,"date":"2024-03-06T14:06:45","date_gmt":"2024-03-06T19:06:45","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=26083"},"modified":"2026-03-26T23:34:27","modified_gmt":"2026-03-27T03:34:27","slug":"abogacia","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/get-involved\/advocacy\/","title":{"rendered":"Abogac\u00eda"},"content":{"rendered":"
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Home<\/a><\/span> \/ Get Involved<\/a><\/span> \/ Advocacy<\/span><\/span><\/div>\n\n
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Advocacy<\/h1>\n\n\n\n

NephCure is the leader in advocacy by representing the interests of rare kidney disease patients and their families, both on Capitol Hill and within federal agencies concerned with the study and treatment of these conditions.<\/p>\n\n\n\n

Our advocacy efforts aim to improve the lives of the patients and families we represent by raising disease-specific awareness and advocating for increased research funding and stronger support for our community.<\/p>\n\n\n\nSIGN UP FOR ACTION ALERTS<\/a>\n\n\n

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NephCure Policy Priorities<\/h2>\n\n\n\n
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NephCure develops its policy priorities in accordance with its mission and in collaboration with the patient community.<\/p>\n\n\n\nLEARN MORE<\/a>\n\n\n\n

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Cosponsor the New Era for Preventing End-Stage Kidney Disease Act<\/p>\n\n<\/div><\/div>\n\n

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Increase Funding for Medical Research and Education and Awareness Activities<\/p>\n\n<\/div><\/div>\n\n

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Continue to Include Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome in Defense Research Activities <\/p>\n\n<\/div><\/div>\n\n

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Cosponsor The Living Donor Protection Act (LDPZ) of 2023, H.R. 2923\/S. 1384<\/p>\n\n<\/div><\/div>\n\n

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Cosponsor The Safe Step Act, H.R. 2630\/S. 652<\/p>\n\n<\/div><\/div>\n\n

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Cosponsor the HELP Copays Act (H.R. 830\/S. 1375)<\/p>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n

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The NephCure Action Network<\/h2>\n\n\n\n

The NephCure Action Network (NCAN) is a movement of patients with rare kidney disease and their caregivers, physicians, and partner organizations who all have one goal: to save kidneys and save lives through lasting legislative and policy improvements. Joining our coalition will allow you to amplify your voice heard and share your stories to educate and help policymakers understand what\u2019s important to those directly impacted by rare kidney disease.<\/p>\n\n\n\nLearn more<\/a>\n\n<\/div>\n<\/div>\n\n

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The New Era Act<\/h2>\n\n\n\n

The New Era of Preventing End-Stage Kidney Disease Act (\u201cNew Era Act\u201d) has the potential to bring about significant positive changes in how we understand, treat, and study rare kidney diseases (RKD). This legislation can help our community by finding and treating RKD earlier, enhancing RKD education of doctors and patients, and conducting more RKD research. Learn more and help support passage of this important legislation.<\/p>\n\n\n\nLearn more<\/a>\n\n<\/div>\n\n

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Rare Kidneys on the Hill Day<\/h2>\n\n\n\n

Rare Kidneys on the Hill Day is an event where advocates, including patients, patient parents and caregivers, raise awareness about rare kidney diseases by engaging with members of Congress. The event aims to influence policy decisions, promote research, and improve healthcare outcomes for those affected by rare kidney conditions. Learn more about this past year’s event and look forward to Rare Kidneys on the Hill Day 2025.<\/p>\n\n\n\nLearn more<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n\n

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Sponsors<\/strong><\/h2>\n\n\n
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The Latest Events & News<\/h2>\n\n\n
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IgAN Awareness Day 2026<\/h2>\n\n
Patient Program<\/span><\/div>\n<\/div>\n\n
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NephCure Adult Support Group<\/h2>\n\n
Support Group<\/span><\/div>\n<\/div>\n\n
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\n\nALL EVENTS<\/a>\n\n<\/div>\n<\/div><\/div>\n\n
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News<\/span><\/p>\n\n

FDA Approves\u00a0Sparsentan\u00a0for FSGS,\u00a0Marking\u00a0a Landmark\u00a0Achievement\u00a0for Patients Living with Rare Kidney Disease<\/h2>\n\n

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News<\/span><\/p>\n\n

NephCure\u00a0Welcomes Rare Kidney Disease Advocate and Grammy Award-Winning Producer Brian Kennedy to Board of Directors<\/h2>\n\n

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Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\nSIGN UP<\/a>\n\n\n
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