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About Workshop #2:
Fondo
We started this journey with a workshop where we brought together multi-stakeholders (physicians, patient advocates, researchers, access experts, policymakers, regulators and industry representatives) for a 2.5 day meeting with panel discussions and consensus-leading conversations where we discussed barriers to IgAN care.
We arrived at the conclusion that the most pressing barriers that we need to address and overcome in the care of patients living with IgAN are the following:
- Urgency in early diagnosis
- Urgency to treat
- Improve access
- Evidence generation
The main outputs from the workshop are highlighted on the IgAN Alliance landing page, including a poster summarizing outputs from the workshop and a white paper to come.
About Workshop #2
After the initial workshop, we launched working groups to address barriers to care: urgency in early diagnosis, urgency to treat, improve access and evidence generation. Workshop #2 will convene about 75-100 working group participants and interested leaders in the community to deliberate on action plans which translate identified barriers to care into accelerating meaningful, real-world change. It will be a dedicated time to pressure test solutions before the real work begins.
Note: Registration for the event is by invitation only
Expected Outcomes
Outputs agreed upon at the workshop will lead to definitive solutions and strategies to begin addressing across each working group.
Preliminary Agenda Overview
Please note topics and speakers are still being finalized. Check back for more updates!
Day 1 | Wednesday, May 13th
2pm-5pm CT: Working group participants ONLY – breakouts and presentation preparation
6pm-8pm: Working group readouts and Q&A dinner
Day 2 | Thursday, May 14th
7am-4pm CT: Full day workshop
Participation Information:
Registration
Registration for this event is by invitation only
Travel Planning
Academic / clinician / non-profit / patient attendees will be offered reimbursement for travel and accommodations up to USD $1,000 (please see “Reimbursements” below for details).
Venue & Hotel Information
The event will take place at the Grand Hyatt DFW, 2337 S. International Parkway, Dallas, TX 75261.
Both the event venue and hotel are located within Dallas/Fort Worth International Airport (DFW). No off-site transportation is required. Complimentary terminal transportation is available within the airport if needed.
Hotel Accommodations: For those traveling to Dallas (DFW), NephCure is pleased to handle booking your hotel accommodations for the event dates. If you require hotel accommodations, this can be selected at the time of registration. Our team will then coordinate your reservation directly with the hotel to ensure a smooth and comfortable stay.
Attire
May 13:
Business casual. Comfortable, professional attire recommended. Layers encouraged.
May 14:
Wear your IgAN Alliance t-shirt in recognition of IgA Nephropathy Awareness Day~
Note: T-shirts will be provided at check-in—haga clic aquí to submit your size if you have not already.
Flights & Getting There
Recommended Airport:
We recommend flying into Dallas/Fort Worth International Airport (DFW).
The hotel & venue is located directly within the airport, making arrival and departure especially convenient.
Getting to the Hotel from DFW:
Note, no off-site transportation is required. After landing, follow airport signage for hotel access within your terminal. Complimentary terminal transportation is available if needed.
Alternate Airport
Dallas Love Field (DAL) is also an option, though it is approximately 20–25 minutes from the hotel.
Getting to the Hotel from DAL:
Rideshare (Uber/Lyft) and taxi services are readily available outside baggage claim.
Reimbursements
Academic / clinician / non-profit / patient attendees: We will reimburse eligible travel expenses (airfare, hotel, airport transfers and meals) up to a cap of USD $1,000. Expenses for reimbursements must be supported by receipts.
The travel reimbursement cap may be extended on a case-by-case basis for those traveling longer distances or experiencing other special circumstances. Please email iganalliance@nephcure.org for consideration.
We cannot reimburse first class airfares but can reimburse the economy fare if you choose to pay the difference on your own. Business class requests will be evaluated on a case by case basis; please email iganalliance@nephcure.org for consideration.
Please download this form to itemize your expenses.
Upload the completed form, along with receipts for each item, aquí. DEADLINE TO SUBMIT REIMBURSMENTS IS SEPTEMBER 1, 2026.
Preliminary
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Orden del día
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IgAN Alliance Corporate Partner Members
Queremos expresar nuestro más sincero agradecimiento a nuestros patrocinadores. Gracias por su compromiso y dedicación a nuestra causa.
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