New FDA-Approved Treatment for RKD

The FDA has approved Gazyva® (obinutuzumab) for adults and children ages 2 and older with idiopathic nephrotic syndrome that began in childhood and is frequently relapsing (FRNS) or steroid-dependent (SDNS). More information coming soon. Please visit our Patient Navigation tool for support.

RECURSOS

/

ENCUENTRA UN ESPECIALISTA

/

CONTACTO

Allison Bones

Manager, Corporate Partnerships

Joining NephCure in June 2025, Allison Bones is honored to serve as Manager, Corporate Partnerships. She holds a bachelor’s degree in business administration with a concentration in marketing from Baylor University and previously worked in Operations at GE Capital. Her passion for supporting the rare disease community came from unspeakable tragedy. In March 2018, she lost her husband Jamie to colorectal cancer. Just five months later, their son Travis, aged 4, died of the previously undiagnosed rare disease Isolated Congenital Asplenia (ICA).

Faced with compound grief and the desire to prevent Travis' tragedy from befalling another family, Allison channeled her energy into creating the first and only nonprofit in the world to support ICA. It is not only Travis’ legacy but also mission-driven to raise awareness, advocate for more comprehensive newborn screening and genetic testing, and fund research on the genetic mutations in spleen development. While Travis’ foundation continues to grow, Allison brought her passion for rare disease advocacy to NephCure. She manages the relationships with our Industry Partners in support of our patient community living with rare kidney diseases.

Her mom lives with her in Goodyear, Arizona. If the two aren't taking a road trip, they are spending time with family and friends who have become chosen family. Allison's hobbies include watching football (both college and pro), cooking, travel, trivia, hiking, bowling, pickleball and celebrating her Italian heritage. Some of her favorite travel memories include fishing on Flathead Lake in Whitefish, Montana, spending time with family in Italy, and touring Machu Picchu and Lima, Peru.

Goodyear, AZ

Noticias relacionadas

NOTICIAS

NephCure Celebrates C3G Awareness Day on September 25, 2026

NOTICIAS

NephCure Specialist of the Month: Dr. Rupali Avasare

NOTICIAS

Making History on Capitol Hill: Record Advocates Unite for NephCure’s Largest Hill Day Ever

NOTICIAS

NephCure Specialist of the Month: Dr. Fahad Aziz

Regístrese para recibir las últimas actualizaciones de NephCure.

INSCRIBIRSE
Este campo es para fines de validación y no debe modificarse.