Click here to learn more and register for the 2018 conference in Montreal.
Check out our ALL NEW Just for Kids page!
The just launched Nephrotic Syndrome Experiment!
Learn hands on; what goes wrong inside the kidneys filtering units when a person has Nephrotic Syndrome.
Click here for a Printable PDF Nephrotic Syndrome Experiment
A big thanks to Ella and Ethan for putting this experiment together for us! You can see more of Ella’s amazing science tutorials on her YouTube channel Sci Files!
The NACI Network is expanding worldwide to speed more effective treatments to individuals with Nephrotic Syndrome
Thanks to a significant funding contribution, we’re proud to announce that the NephCure Accelerating Cures Institute (NACI) Care Network is expanding. An investment from Pfizer’s Centers for Therapeutic Innovation (PFE) and Retrophin (RTRX) will help grow the network from 8 sites to 30 sites worldwide. For patients living with Nephrotic Syndrome, more NACI sites means greater access to specialized care and trial opportunities specific to their unique kidney condition. Equally important, a more robust Network gives families across the globe a hub for community building and support at their individual care sites.
The NACI story began in 2014, when leaders from NephCure Kidney International sought advice from leading medical professionals about ways to get better treatment options to patients faster. That following year, NKI launched NACI in partnership with the University of Michigan. Today, NACI is co-led by veteran representatives from NKI in suburban Philadelphia and an expert team from the University of Michigan, Ann Arbor.
To read more about NACI, you can view the full press release here, or visit the NACI website at www.nephcureaci.org. If you have any questions or want to learn more, please send us an email at email@example.com, and we will direct your message to the appropriate party.
Are you or a family member/friend impacted by Nephrotic Syndrome, FSGS -Focal Segmental Glomerulosclerosis – or MCD – Minimal Change Disease?
You have come to the right place!
Hearing a foreign diagnosis that is difficult to pronounce, let alone understand, is very unsettling. Know that you are not alone. NephCure Kidney International and our community of patients, patient families, medical professionals, and researchers are here to provide you with the tools you need to get connected, get educated and find out about the latest research and treatment options available.
How do I get started?
Help us help you, by telling us what brought you here to NephCure Kidney International and what resources you are seeking.
It’s easy, just click here, answer a few simple questions on the NephCure Information Form. This gives us the jumping off point to find out where you are in your individual journey with Nephrotic Syndrome and how we can provide you with the tools you need to join in the fight for improved treatments and the cure!