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Adult Nephrotic Syndrome Patient Stories

Christopher

Christopher

Adult, Nephrotic Syndrome

In 1989, at the age of two, I was diagnosed with Nephrotic Syndrome. Growing up I would relapse constantly, especially around the holidays. Immense weight gains, pain in my legs, serious edema [...]

Christopher S.

Christopher S.

Adult, Nephrotic Syndrome and End-Stage Renal Disease

My journey with kidney disease has been a long one full of trials and hope. I have lived through about every stage of kidney disease there is. Infancy, childhood, kidney transplant, adolescence [...]

Princess

Princess

Adult, Nephrotic Syndrome

I was diagnosed with Nephrotic Syndrome in 2008 when I was 17 years old. When I was first diagnosed, I was getting protein infusions every two weeks. About a half a year later, I ended up with [...]

Stephanie D.L.R.

Stephanie D.L.R.

Adult, Nephrotic Syndrome

I woke up one day and my face, neck, arms, and hands were all swollen. I was told to take allergy medication because I must have been having an allergic reaction to something. I did just that and it s

Susan F.

Susan F.

Adult, Nephrotic Syndrome

May 6, 2020, marks the 37th anniversary of the day I walked into the doctor's office because I had swollen ankles. I was diagnosed with Nephrotic Syndrome. I had never heard of [...]

Our Mission

NephCure Kidney International’s ® mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome, and to provide education and support that will improve the lives of those affected by these protein-spilling kidney diseases.

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