Adult Nephrotic Syndrome Patient Stories

In 1989, at the age of two, I was diagnosed with Nephrotic Syndrome. Growing up I would relapse constantly, especially around the holidays. Immense weight gains, pain in my legs, serious edema [...]

My journey with kidney disease has been a long one full of trials and hope. I have lived through about every stage of kidney disease there is. Infancy, childhood, kidney transplant, adolescence...

I was diagnosed with Nephrotic Syndrome in 2008 when I was 17 years old. When I was first diagnosed, I was getting protein infusions every two weeks. About a half a year later, I ended up with [...]

I woke up one day and my face, neck, arms, and hands were all swollen. I was told to take allergy medication because I must have been having an allergic reaction to something. I did just that and it

May 6, 2020, marks the 37th anniversary of the day I walked into the doctor's office because I had swollen ankles. I was diagnosed with Nephrotic Syndrome. I had never heard of...