Adult Minimal Change Disease Patient Stories

My name is Adriana. I was diagnosed when I was 27 years old with Nephrotic Syndrome caused by Minimal Change Disease. I was told it is very rare for adults to have this particular disease. I was [...]

I was first diagnosed with Minimal Change Nephrotic Syndrome at age two in 1985. Since then, my diagnosis has been confirmed with two kidney biopsies. My mom was the first to recognize that [...]

I was diagnosed with Minimal Change Disease about two years ago. I was hospitalized for 5-7 days and given Albumin, Lasix and Prednisone intravenously; then I was given oral Prednisone (80mg) [...]

I probably had hundreds upon hundreds of relapses from age 2 until age 24 to the point where I was unresponsive to Predsnisone. I then had a Cytoxan/Prednisone combination and have been in [...]

My story started in the year 1995, when I was 37 years old. I live in the Netherlands and I had just started a new career as a free entrepreneur. For me, this was a completely different life. I [...]

I was diagnosed with Minimal Change Disease and IgA Nephropathy in late July 2013. I gained 48 pounds the week before being admitted into the hospital. There is no history of kidney issues in my [...]

I was diagnosed with Minimal Change Disease during my freshman year of college. During my last final of freshman year, my stomach, fingers, and eyelids were swollen, and it was painful to walk [...]

For many years, I worked as a Nursing Supervisor at Children's Hospital in Boston. I saw many children with Nephrotic Syndrome - Minimal Change Disease. Back then, they were treated as very sick [...]

The day after my 14th birthday, May 10th, 1999, I was admitted to the hospital after a urine test showed blood and protein in my urine. I went in to the doctor because I was experiencing [...]