Reports to: Executive Director, Patient Engagement
Location: Virtual (HQ in King of Prussia, PA)
Start date: Immediate (4th Quarter 2021)
Company Overview: NephCure Kidney International (NephCure) is the only organization committed exclusively to accelerating research for effective treatments for rare forms of Nephrotic Syndrome. Additionally, we provide education and support to improve the lives of those affected by these protein-spilling kidney diseases.
The Associate Director of Government Relations and Advocacy’s primary role will be to grow the advocacy network for the organization and move strategic advocacy issues forward. The Associate Director will play a key role in working alongside external partners in the strategic development and advancement of NephCure’s policy agenda, key initiatives, and policy priorities. They will also lead the charge in coalescing and consistently engaging volunteer advocates by enhancing and expanding the grassroots program. This role requires the ability to understand complex legislative issues, articulate positions, and develop and foster relationships with diverse stakeholders to drive key initiatives and advance policy priorities.
As a member of the NephCure team, they will work in a fast-paced environment that values collaboration, innovation, diverse perspectives, and, most of all, a relentless determination to help those with rare kidney disease save their kidneys and live their best lives.
- Oversee the development and execution of NephCure’s Advocacy Network (Regional Communities, Advocacy Volunteers, Third Party Partners, Legislators and Regulators) and increase NephCure’s visibility, presence, and influence in government relations
- Serve as a liaison with external government relations partners, lobbying groups, and consulting firms to:
- Monitor and track policy interest to ensure the advancement of legislation on Capitol Hill
- Collaborate with NephCure’s Marketing and Communications Department to create messaging and content to educate and engage stakeholders. Offer recommendations and suggestions for messages to ensure that they are on-point, unified, reflect applicable research, and utilize engaging patient stories to enhance impact.
- Form and drive key alliances with likeminded groups to mobilize the collective community around NephCure’s policy agenda.
- Identify, develop, and maintain strong relationships with key decision makers. Support and provide guidance to advocacy peers.
- Monitor, evaluate, strategize, and recommend action on all federal policy related to rare kidney disease, dialysis, organ transplant, organ donation, and post-transplant care.
- Identify, recruit, and activate NephCure Volunteer Advocates in collaboration with Regional Community Leaders.
- Act as point person for the Advocacy Action Center and Phone2Action platform, as well as the internal champion for integrating with NephCure’s existing systems.
- Contribute to writing policy and advocacy communications such as letters, manifestos or position papers, testimonies, and marketing campaigns.
- Plan and implement NephCure’s annual Hill Day.
- Ensure that all NephCure Advocacy Network members receive regular communication about progress and impact of advocacy work. Members include outside stakeholders/partners, regional communities, and staff.
- Represent NephCure in relevant hearings, meetings, partner coalitions, and conferences.
- Represent NephCure at events as needed.
- Bachelor’s degree, preferably in public policy, public administration, social science, or public health.
- Minimum of two to four years of related professional experience.
- Understanding of the legislative system, lobbying skills, and how to influence outcomes.
- Demonstrated team skills and ability to form strong partnerships and alliances with a diverse set of stakeholders.
- Top candidates will have experience with non-profit grassroots advocacy, healthcare related policy, and activating volunteers.
- Strong writing and presentation skills with an understanding of writing for an organizational voice is highly preferred.
Other Experience and Qualifications
- Excited to work in a fast-paced environment and thrives in managing multiple tasks simultaneously.
- Excellent communication skills and demonstrated ability to work as both a leader and as part of a team, inspiring others and aligning team members and stakeholders toward agreed direction, goals, and objectives.
- Willingness to work a flexible schedule with minimum supervision.
- Ability to work flexible hours to accommodate constituents on the West Coast is preferred.
- Ability to work occasional nights and weekends to support related activities.
- Proficient with Microsoft Office software including Word, Excel, Outlook, and PowerPoint.
- Experience in grant writing a bonus.
- Ability to travel by plane as needed.
- Valid driver’s license and reliable transportation.
Candidates may live anywhere in the U.S. and work remotely. NephCure offers a supportive and entrepreneurial work environment. Travel is budgeted at 20%. NephCure has an excellent benefits package, including health, vision, dental, and group life insurance, with the option to purchase individual short-term and long-term disability and life insurance. NephCure also offers paid holidays, 30 PTO days per year, and a 401(k) after 6 months of employment with company match up to 4%. NephCure offers competitive salaries and promotion potential. NephCure is an EOE.
To apply: Please send a resume, cover letter, and salary requirements to firstname.lastname@example.org.