Associate Director of Community Health Position Title: Associate Director of Community Health Salary Range: $60,000-$70,000 per year Reports to: Vice President, Professional Relations Location: Remote, virtual (East Coast time zone preferred, but ability to work between 9-5 PM, 8-4 PM, or 10-6 PM ET, including a lunch break, is acceptable) Who You Are: As the Associate Director of Community Health, you are part of a team of passionate, impact-oriented doers who are pushing forward our mission to find better treatments and cures and support families impacted by rare and chronic kidney diseases. You aim to be a force of good in the world and are motivated by the stories of families who have been affected by these conditions. You are both a planner and a person of action. You will study and absorb the complexities of the different journeys that rare kidney disease patients take, and you will eagerly stay up to date on how to reach and support these patients with resources specifically for them. You are a relationship-builder and will assemble a network of trusted partner organizations, healthcare providers, patients, and other stakeholders. You are a self-starter and excel at working independently in a fast-paced environment. Why Join NephCure? NephCure Kidney International (NephCure) is the only organization committed exclusively to accelerating research for treatments for rare forms of Nephrotic Syndrome. We provide education and support to improve the lives of those affected by these protein-spilling kidney diseases. We pride ourselves on working at a fast pace, excellently, and then taking time to recharge and regroup. If you are a perfectionist and hold yourself to a high standard, you’ll fit right in. There are always new and exciting challenges at NephCure, and we keep things interesting and fun. For the right person, there are many opportunities to grow with the organization and actively shape your—and NephCure’s—future. This is a full-time exempt position. Travel is budgeted at 5%. NephCure has an excellent benefits package, including health, vision, dental, and group life insurance, with the option to purchase individual short-term and long-term disability and life insurance. NephCure also offers paid holidays, 30 PTO days per year, and a 401(k) after 6 months of employment with company match up to 4%. NephCure offers competitive salaries and promotion potential. NephCure is an EOE. Position Summary The Associate Director will be focused on raising awareness of rare kidney diseases for all patients, but especially in communities of color in the United States who are at increased risk for these conditions. Through new and existing community-based outreach programs, they will help increase the understanding of community, familial, and individual kidney disease risks and the early warning signs associated with these rare kidney diseases. The goals of these programs are to identify and more accurately diagnose kidney disease in earlier stages, connect patients with expert physicians, and provide access to the latest research opportunities, ultimately leading to better kidney health outcomes within these communities. The Associate Director will support these programs with new and existing educational materials and will work directly with at-risk individuals and newly-diagnosed patients to connect them with locally-based rare kidney disease expert healthcare providers. Job functions include: Program Management (50%) Understand, research, and stay up to date on community needs and health disparities that affect kidney health in communities of color in the United States, ultimately becoming a subject matter expert in this area. This includes reading academic research articles, attending relevant professional education opportunities and webinars, and performing regular social media “listening” to understand, summarize, and identify takeaways from individual needs within these communities. Assess existing NephCure programs, benchmark against other community-based outreach work, and offer strategies to continually improve and refine these programs. Expand existing NephCure programs to facilitate access to earlier and more accurate diagnoses, which may include opportunities for kidney disease screenings and urine, blood, and/or genetic tests. Work in collaboration with external partners to create shared timelines and execute programming accordingly. Create evaluation and measurement tools, e.g. surveys and other performance indicators, to track program progress and impact. Identify replicable best practices and memorialize in white papers or reports. Engage in relevant social media groups to share educational programming and resources and represent NephCure’s mission. Educational Resource Creation (35%) Understand and summarize typical patient journeys. Stay up to date on current treatment plans and clinical research opportunities. Conceptualize new educational content to facilitate patient outreach. May include information sheets, brochures, and infographics. Graphic design support will be provided. Provide NephCure’s Health Equity Initiative Patient Advisory Board with opportunities to guide new resource concepts and coordinate with them and other stakeholders in the formation, review, and finalization of new resources. Identify gaps in existing content library, prioritize needs, and draft new resources. Work with the Marketing and Communications Department to provide new and updated website content. Patient Coordination (15%) Work individually with at-risk and newly-diagnosed patients and families to connect them with screenings, disease information and resources, and local healthcare providers who specialize in rare kidney disease. Follow up with patients to ensure that they received the necessary care and research opportunities, and connect them with further educational, support, and engagement programs. Other Qualifications Bachelor’s degree required. Master’s degree a plus. Minimum 3-5 years of experience providing community-based health programs/outreach required. Individuals with a background in public health, nursing, or healthcare are encouraged to apply. Prior direct patient experience a plus. Ability to think critically on both individual and team projects. Willingness to work a flexible schedule with minimum supervision is required. Ability to accommodate evening calls or 3-5 weekend meetings per year. Personal investment in chronic kidney disease a plus. NephCure requires its candidates, as applicable and as permitted by law, to obtain and provide confirmation of all required vaccinations and screenings prior to the start of employment activity. This may include, but is not limited to, the COVID-19 vaccination, influenza vaccination, and/or any future required vaccines and screenings. To apply: Please send a cover letter and resume to Lauren Eva (Vice President, Professional Relations) at Lauren.Eva@NephCure.org.