The NACI Network is expanding worldwide to speed more effective treatments to individuals with Nephrotic Syndrome
Thanks to a significant funding contribution, we’re proud to announce that the NephCure Accelerating Cures Institute (NACI) Care Network is expanding. An investment from Pfizer’s Centers for Therapeutic Innovation (PFE) and Retrophin (RTRX) will help grow the network from 8 sites to 30 sites worldwide. For patients living with Nephrotic Syndrome, more NACI sites means greater access to specialized care and trial opportunities specific to their unique kidney condition. Equally important, a more robust Network gives families across the globe a hub for community building and support at their individual care sites.
NephCure Accelerating Cures Institute Global Trials Network
The NACI story began in 2014, when leaders from NephCure Kidney International sought advice from leading medical professionals about ways to get better treatment options to patients faster. That following year, NKI launched NACI in partnership with the University of Michigan. Today, NACI is co-led by veteran representatives from NKI in suburban Philadelphia and an expert team from the University of Michigan, Ann Arbor.
NephCure Accelerating Cures Institute United States Trials Network
To read more about NACI, you can view the full press release here, or visit the NACI website at www.nephcureaci.org. If you have any questions or want to learn more, please send us an email at info@nephcure.org, and we will direct your message to the appropriate party.
Hi where abouts in the uk are you planning please this is great news
Hi Gemma–I’m so glad you’re interested! We are working on getting two NACI sites up in the UK very soon. They will likely be located in Mancester and Bristol. In the meantime, make sure you’re following us on Facebook (https://www.facebook.com/nephcure/) and Twitter (https://twitter.com/Nephcure) for the latest news on these sites, and continue to check in with us for updates on trial opportunities. Also, if you’re interested in reaching out to others in the UK who are affected by Nephrotic Syndrome, I encourage you to send an email to Kelly (khelm@nephcure.org) and she’d be thrilled to connect you with folks in your region.
Hi this is wonderful news. Could u be able to tell me where in Australia it will be and how to get involved. I was diagnosed with both Nephrotic Syndrome and Primary FSGS in July 2016
Hi Mary–Thanks for reaching out and I agree, it is wonderful! In Australia, the Melbourne Renal Research Group is participating with NACI under the direction of Dr. David Packham. Stay connected with us on Facebook (https://www.facebook.com/nephcure/) and Twitter (https://twitter.com/Nephcure) to get updates on when there will be an active trial at that site and for other NACI news.
And if you’re interested in reaching out to others in your part of Australia who are affected by Nephrotic Syndrome, I encourage you to send an email to Kelly (khelm@nephcure.org), who would be thrilled to connect you with folks near you.
This is great news! Will there be a site in France?
Hi Vivienne! Currently, there are no plans for a site in France, though we are working on getting two sites going in the UK. Stay tuned here and on our social media pages (Facebook https://www.facebook.com/nephcure/ and Twitter https://twitter.com/Nephcure) for more updates and other NACI news.