Advocacy Action Alert
Please contact your two Senators and your House Representative to ask them to support critical patient protections during the current healthcare reform effort
Congress is currently debating significant changes to the healthcare system, including changes that will impact private insurance expenses and accessibility. This debate has the potential to create many negative outcomes for individuals and families affected by chronic or costly medical conditions. If federal patient protections are ultimately removed or weakened, then many patients could be exposed to increased costs, medical bankruptcy, and lack of access to needed
care or therapies.
Patient protection is a crucial piece to any healthcare legislation, and lawmakers need to understand that there are some essential “pillars” of patient protection that must be included in any healthcare reform. These pillars can greatly benefit primary NS patients and families in terms of their insurance coverage.
The essential pillars of patient protection are:
- Prohibiting discrimination from coverage based on pre-existing conditions
- Allowing children to remain on their parents’ policy until age 26
- Limiting out-of-pocket costs for patients
- Prohibiting annual or lifetime caps on insurance benefits
Members of Congress need to understand that their constituents expect them to maintain and strengthen patient protections in the healthcare system. The best way to educate your two Senators and your House Representative about your needs and earn their support for patient protections is to connect with their offices and make your voice heard.
How To Take Action
- Secure the contact information for your two Senators and one Representative by visiting Senate.gov and www.House.gov and using the “Find Your Senator/Representative” query tool in the upper right corner.
- Call the office and ask for the Health Legislative Assistant. You can either leave a voicemail or request their e-mail address and send them a message using the template on the next page.
- Politely and occasionally follow up on the request. You should have an expectation that the office will respond to your specific concerns.
- If you would like to do more, you can request a brief meeting with the staff at your members’ local offices (the location information is on their websites).
- Don’t forget about NephCure’s Advocacy Day on Capitol Hill! More details coming soon, but save the date for June 2017.
SAMPLE EMAIL, LETTER, OR CALL TRANSCRIPT
My name is _________ and I am a constituent from _________. I am also an advocate for the community of individuals impacted by (medical condition). As you and your colleagues consider healthcare reforms, please make sure any proposal maintains crucial patient protections that promote access and prevent financial hardships. Specifically, please continue to:
- Prohibit pre-existing condition discrimination
- Allow young adults to stay on family coverage until they are 26
- Limit out-of-pocket costs for patients
- Restrict lifetime and annual caps on benefits
I am / My family member is living with a chronic and debilitating kidney disease called _________. Currently, there is no FDA approved treatment option for this disease. That means therapies are expensive and can have many side effects, which require more treatments. [ADD MORE OF YOUR PERSONAL STORY / EXPERIENCE]
Thank you for your time and your consideration of this letter. Please tell me how you have responded to my request.
*If you are interested in attending or learning more about NephCure’s upcoming Advocacy Day, please email email@example.com for more information