Levine Family is STANDING UP TO BE COUNTED! April 10, 2015 by Jessica Martin The Levine family just took great steps to STAND UP & BE COUNTED. Meeting with the Congressman, they took just another step for the best representation and advocation for those with Nephrotic Syndrome and FSGS. Sydney Levine, who recently started a viral social media campaign with the #SUBCselfie project, caught the attention of the Congressman as well as many famous, powerful voices across the country. As a result of the Levine family, who never stop trying to find ways to beat FSGS for son and brother, Matthew, the right people are becoming aware and joining in the fight. The Congressman will be taking this to appropriations on the hill next week!
sandra.levine.39@facebook.com says May 6, 2015 at 6:38 am I has fsgs and struggling with my weight and swelling this is my 3rd dr the other one medication didn’t work so I switch I think this one I’m seeing now may help me so I’m not giving up u can contact me by email if u needs to chat thanks and you have good day