News & Events

100 volunteers needed for once-in-a-lifetime Super Bowl experience. The application deadline was 12 p.m.

NephCure Golf Outing at Trump Raises Over $100K

The NephCure Foundation’s annual golf outing took place on Monday, October 15, at prestigious Trump National Golf Club in Bedminster, NJ, and over $100,000 was raised in the fight against the kidney disease FSGS and Nephrotic Syndrome.

Andrew Si

Father, son duo conquering life's curves and cobia together

FORT PIERCE, FL — Like many fathers and sons, former major league catcher Ed Hearn and his 17-year-old son Cody share many interests. 

They both love baseball, the sport that carried Ed from the diamond at Fort Pierce Central High School to the big

The Inaugural Raffle Ride and Harleyween Festival Dubbed a Success

Motorcycle riders joined forces with The NephCure Foundation on Saturday, October 27 for the inaugural Raffle Ride for NephCure and Harleyween Festival sponsored by San Diego Harley-Davidson and the San Diego Harley Owners Group (HOG).

Major Health Insurer to Consider Cutting Costs by Cutting Coverage of Nephrotic Syndrome Treamtment

Aetna has indicated that they may restrict or eliminate coverage for the drug Acthar, a treatment for Nephrotic Syndrome. If Aetna succeeds in eliminating coverage for this drug, the decision could cause a ripple-effect that could impact negatively people suffering from other rare diseases. Other insurance companies could view Aetna’s decision as an invitation to stop covering treatments of other rare diseases.

 Click here to view the online petition.

CHOP/UPENN Researcher Awarded Career Development Grant

The NephCure Foundation announced today that Michelle Denburg, M.D., M.S.C.E, an assistant professor of Pediatrics at The Children’s Hospital of Philadelphia and at the Perelman School of Medicine at the University of Pennsylvania, has received a $200,000 Career Development Grant.

Miss NY among celebs who lined up for NephCure at CFCD 2012

Real Housewife of New Jersey Teresa Giudice, actor Dominic Chianese, former NBA star John Wallace and Miss New York 2011 Kaitlin Monte (photo left) helped raise funds at Cantor Fitzgerald’s Charity Day 2012 on Tuesday, September 11 in New York City on behalf of The NephCure Foundation

This I Believe

The following essay was written by 14-year-old Shelby Heard, who is a close family friend with FSGS patient Matthew Levine.

I believe that your tragedies do not define you.

NephCure to Consult with Researchers on Nephrotic Syndrome Study  

The Patient Centered Outcomes Research Institute (PCORI) awarded a contract to support the “Development of a Patient-Centered Decision Tool for Nephrotic Syndrome Management.” Debbie Gipson, M.S., M.D. (photo left), principal investigator and pediatric nephrologist at the University of Michigan in Ann Arbor will lead the two-year project  at the University of Michigan, University of North Carolina and Ryerson University in Toronto in conjunction with The NephCure Foundation.

Wine Tasting Provides Opportunity for Families to Meet Prior to Virginia Walk

Team Virginia held a wine tasting event on July 15 at Barrel Oak Wine