Policy & Disclaimers

Welcome to NephSpace.org
NephSpace.org is provided to YOU by The NephCure Foundation (www.NephCure.org), a 501(c)(3) non-profit organization committed exclusively to support research seeking the cause of the potentially debilitating kidney disease, Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome (NS), improve treatment, and find a cure.

NephSpace is open online community for patients and families affected by Nephrotic Syndrome, Minimal Change Disease, FSGS and Membranous Nephropathy.  As a NephSpace member, your benefits include:
•    Interacting with other patients/families
•    Connecting with different cultures, nationalities, and age groups
•    Sharing your concerns, hopes and personal stories, and help to inspire others
•    Access to educational materials to help you better understand FSGS, Nephrotic Syndrome, and Minimal Change Disease
•    Specific sections vetted by nephrologists, researchers, dieticians, and social workers
•    Staying on top of ongoing studies and clinical trials
•    Receiving the latest information on educational initiatives and other events in your area

The success of NephSpace.org depends on your participation and our providing an educational, interactive, and safe environment.  We encourage you to share your personal stories and to honor the following ground rules to protect yourself, The Nephcure Foundation, and other NephSpace members:
•    Respect others’ opinions
•    Always consult with your healthcare professionals before making any changes to your medical care, lifestyle, diet after reading information on NephSpace
•    Use acceptable language
•    Use good judgment when discussing sensitive topics. Please be empathetic and respectful of the feelings of others

Please refrain from:
•    Posing as someone you are not
•    Unauthorized advertising, promotional materials, spam, chain letters, junk mail, and other form of solicitation without The NephCure Foundation’s consent
•    Sharing private information about someone else.

We hereby reserve the right to alter or expand our policies with or without notification. You are responsible to read and comprehend these policies. We reserve the right to deactivate your account if we deem that any one or more of the above-mentioned policies were violated.

Privacy Policy

Your Privacy
The NephCure Foundation recognizes your trust and fully respects your privacy. We will not sell your personal information (name, address, e-mail address, or credit card information) to any third party without your permission. However, there are situations when we are required by law or legal process to provide information about a customer. If you have made a donation or indicated that you would like to receive information from The NephCure Foundation, we may send you occasional updates via e-mail. If you prefer not to receive these e-mail updates, simply follow the instructions on how to unsubscribe included in the messages you receive. If you have any questions regarding our privacy practices, please e-mail us at  info@nephcure.org.

Secure Transactions
The NephCure Foundation uses the latest encryption technology and other methods to protect your credit card information. You can make donations using Netscapes SSL encryption (the Internet standard for secure transactions) or you can mail us a check instead. For more information about credit card security or other payment options, please e-mail us at info@nephcure.org.

Changes to our Policy
Our Privacy & Security Policy is intended to provide you with the safest and most secure experience possible. Since offerings and technologies change, we reserve the right to change, modify, add or remove portions of our Policy at any time without prior notice. Please periodically review our Policy for changes. If you have any questions, or would like further clarification, please e-mail us at info@nephcure.org.

 
Disclaimer

The content provided by The NephCure Foundation is for information purposes only and is in no way intended to be a substitute for medical consultation with a qualified professional. The NephCure Foundation encourages Internet users to be careful when using medical information. If you are unsure about your medical condition, consult a physician. Although we carefully review our content, The NephCure Foundation cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of Web sites linked to our site