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Cuppycake Sam has NS
Learn about the boy with Nephrotic Syndrome (NS) who became famous. See the video, like it and share it. Go Here >
Megan's story:
My youngest daughter, Megan, is living with the kidney disease Focal Segmental Glomerulosclerosis (FSGS).
In 2000, we had taken Megan to the pediatrician for her 4-year-old wellness check-up when her urine tests came back with high protein levels. We were referred to a pediatric nephrologist. At the time, there wasn't one where we live in Wichita, KS. So, we were referred to Dr. Warady from Children's Mercy in Kansas City, who made frequent visits to Wichita.
Megan spent that first year reluctantly being poked and prodded with needles and giving urine samples. She endured test after test, to monitor her protein/creatine ratio, as well as other levels. Dr. Warady was great to Megan and was only doing what was needed to be done to diagnose her condition. He prescribed different blood pressure medications, which seemed to keep her levels pretty steady, but none really returned to the "normal"


