Other Medical Resources for Patients

The NephCure Foundation is the one stop shop for information and resources on Nephrotic Syndrome and FSGS.

Support Groups:

• NephCure’s NephSpace – http://www.nephcure.org/nephspace
• Nephkids - http://cybernephrology.ualberta.ca/nephkids/
• Kidcomm - http://www.kidcomm.org/
• Email - kidneykidneydisease@yahoogroups.com
• Google Group on Kidney Disease - http://groups.google.com/group/alt.support.kidney-disease?hl=en

Sources of financial help for patients:

• American Kidney Fund: http://www.kidneyfund.org/patient-grants/
• National Kidney Foundation: www.Kidney.org
• NIDDK: http://kidney.niddk.nih.gov/kudiseases/pubs/financialhelp/
• Patient Advocate Foundation: http://www.patientadvocate.org/ - resources for copays, coinsurance, and medical debt.                                                                                                                          • NORD Patient Assistance Program: http://www.rarediseases.org/patients-and-families/patient-assistance

Social support for children:

• The Children's Kidney Foundation  http://www.thechildrenskidneyfoundation.org/
• Frost Valley YMCA Summer Camp: A Retreat for Children with Kidney Disease
• Camp Sunshine: A Retreat for Children with Life-Threatening Illnesses and their Families                • The Ruth Gottscho Kidney Foundation  http://gottschokidney.org/