Nephrotic Syndrome, FSGS, Kidney Disease
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BE AN ADVOCATE

ADVOCACY ALERT
  Write to your congressional representatives and encourage support for funding
the Nephrotic Syndrome Rare Disease Clinical Research Network by the National
Institutes of Health (NIH). Download the letter here.
 

 


You are the voice of all NephCure families when you speak up for vital
research funding or advocate for public policies that bolster the fight against
these devastating diseases. Together, we form a nationwide network of
people dedicated to finding the cause and cure Nephrotic Syndrome and FSGS.

To read more about how your efforts can help make a difference, click here.

Take an active role in shaping public policy. We will give you the tools you need
to succeed:


• a sample letter to your congress person.
• NephCure Now action alerts asking you to reach out to local policymakers.
• news and updates that affect the NephCure community.

To become an advocate contact info@nephcure.org.

To find your local elected officials and for more information about taking legislative
action, please visit http://www.kidneycanceralliance.org

     
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Congressman Ron Klein letter of support
FY2009 House Approps NephCure
FY2009 Senate Approps NephCure
FASEB Release
FY2009 Memo Approps NephCure
Congressman Jim Gerlach letter of support