Help give Sophia Hope!
Let's find a cure for Nephrotic Syndrome!
Our daughter Sophia was diagnosed with a kidney disease called Nephrotic Syndrome on March 24th, 2011. She was around 14 months old at the time and had recently had an infection. The doctors thought the swelling she had been having was due to the infection and it took blood work and urinalysis almost two weeks later to determine that it was actually her kidneys not working correctly. The same day the blood results and urinalysis came back we were rushed to Riley's Hospital in Indianapolis, IN. Once there, we were informed that she had Nephrotic Syndrome. It was very scary for my wife, family, and I not knowing what this disease was and why she had it. Since that time Sophia has stayed 2 weeks at Riley's to administer medicines we could not give her at home. Sophia has been on a treatment of steroids and does appear to have responded to the steroid treatments, but it does not keep the syndrome away for long. Due to the relapses occuring more frequently she has been started on a 12 week course of chemotherapy medicine. We have found out the chemotherapy medicine can cause her beautiful golden curly hair to fall out and deplete her already weakened immune system. It is hard to say what exactly the future holds for little Sophia, whom is now 18 months old, but I know with the support of our family and friends she is well loved and will be taken care of.
There is no known cure for Nephrotic Syndrome and it is uncertain why people get the disease, but with your help we would like to raise money to help continue the research required to help find a cure. Please donate online through this website in honor of Sophia, and look for our upcoming fundraiser event to be held this Spring, 2012.
Also, if you have any questions on how to get tickets to attend the benefit or would like to just purchase raffle tickets, please contact us at nwill79@gmail.com.
Sisters Rilee and Addison Will with their sister Sophia Will. Sophia was diagnosed with Nephrotic Syndrome.