Our Stories

Aubrey’s Story

Our daughter, Aubrey, was diagnosed with Focal Segmental Glumerulosclerosis (FSGS) on April 15, 2009 at the age of 8. 

In January of 2009 Aubrey’s pediatrician noticed that there was protein showing up in her urine.  Aubrey had been treated a few times that month for the flu and the norovirus and was being examined again to make sure she wasn’t dehydrated.  Aubrey’s pediatrician ordered blood work, 24-hour urinalysis, and an ultrasound.  The results from those tests didn’t explain why there was protein present in her urine so we were referred to a pediatric nephrologist at MCV.  In March of 2009, Aubrey had a kidney biopsy and then we received the diagnosis of FSGS. 

When we got the diagnosis we were in shock. We had never heard of this disease and we had no idea what the disease was or how our daughter would be affected.  All we knew was that our lives would never be the same.  We have no idea how Aubrey got this disease and as of today there is no cure. 

Since the diagnosis Aubrey has been treated with a few different medications.  She started taking prednisone (a