Our Stories

In 1995 at the tender age of 1 1/2, Eric was diagnosed with Nephrotic Syndrome and our entire lives changed.

Over the course of the years in dealing with chronic illness, all the varied medications, hospitalizations, appointments, biopsies, surgeries, unknown fears and constant tears, my sons and I have struggled to keep our spirits up and try to accept the challenges that have been placed in front of us. We know the doctors don't have all the answers and we know as parents, caretakers and loved ones we can't provide the answers either, but we continue to hope and pray that a cure will be found for families affected by Nephrotic Syndrome and FSGS.

At 18 years old, Eric relapsed after nearly three years in remission.

It is my sincere hope that as Eric moves into his young adulthood, he will better understand and motivate himself to continue to do what is necessary to live healthier. I remember asking the doctors throughout different stages of Eric's life, what can I expect now? Will this disease continue to trouble him psychologically and emotionally?