Become a Nephlete

The Nephlete Experience

Together to the finish line. Couch potatoes and athletes alike are invited to participate in established events to fundraise for NephCure in honor of friends or family members who are battling Nephrotic Syndrome and FSGS.  We call these fundraisers Nephletes, who are automatically part of the NephCure Super Squad, joining folks from all over the world who share your efforts in both large and smaller events. 

Potential events include marathons, swimmathons, bikeathons, triathalons, and other competitive challenges. 

Email us if interested in becoming a NEPHLETE!

UPCOMING NEPHLETE EVENTS:

2013 Nephlete Events - If you are interested in participating in an endurance event not listed below, click here, or contact Kim Cooley for information, email, or phone 610-540-0186 ext.18.

Seeking Nephletes to Rock N Run for a Cure in select Rock 'n' Roll Marathon Series events! This is a great opportunity to accomplish a personal goal while giving back! Register for your event today and show your support for NephCure! For a list of events, more information and to register, click here!

Fargo Marathon in North Dakota, May 2013- Four Nephletes are preparing to run either a half or a full marathon in honor of Ciana for the NephCure Foundation. Click here to donate or additional information.

Orange County Classic 10K in Middletown, New York, June 2013 - Join Van Remenar’s “The Fighting Kidneys” Nephlete team and fundraise for NephCure. The team with the most participants will receive part of the proceeds from the event. Visit thefightingkidneys.com to join or learn to learn more. Have questions? Email Kim Cooley at kcooley@nephcure.org or call her at 610.540.0186 x18

NYC Triathlon Sunday, July 14, 2013 - contact Kim Cooley for information, email, or phone 610-540-0186 ext.18. Click to donate or additional information.

Chicago, IL Rock N Roll Half Marathon - If you are interested in participating click here, or contact Donald Ortale for details, email or call 630-965-1000.

Falmouth Road Race in MA, Sunday August 11, 2013 -  If you are interested in participating click here, or contact Kim Cooley  for information, phone 610-540-0186 ext. 16 or email. 

Sea Gull Century Bike Ride in MD, Saturday October 5, 2013 - contact Bri Newland for information email,  phone 610-540-0186 ext. 16, or click here for details.

Royal Parks, UK Half Marathon  October 6, 2013- If you are interested in participating  click here, or contact Kim Cooley for information, email, or phone 610-540-0186 ext.18

NephCure will support you by:

Step 1: Helping you to select any athletic event (marathon, half-marathon, triathlon, etc) to participate in honor of a co-worker, neighbor or loved one and in support of NephCure. You can also be registered in one of our charity spots and paired with a family to fundraise.  

 Step 2: Helping you set your personal fundraising goal!

Step 3: Creating your personal webpage so that you can invite your friends and family to join your efforts.For more information and to register, please contact us or call Cindy Liberatore at 1-866 Nephcure x21.

Take the 4M Challenge:
In one month, walk, run, ride, swim, skate (choose your activity!) either 13.2 or 26.2 miles.  Sign up and set up your page, we'll send you a pedometer to track your progress.  Raise $100 for your NephCure laces, $500 for your 4M T-Shirt and $1,000 for entry to win an iPod!   Read more about Nephletes on Team NephCure at www.whyimontherun.wordpress.com.  

CLICK HERE to sign up for the 4M Challenge! 



 NEPHLETES WALL OF FAME:

Second Annual Royal Parks Foundation Half Marathon Nephletes!
Several Nephletes NephCure participated for the third year in the Royal Parks Historic Half Marathon in London, England.  Click here to donate or additional information.

Team NephCure Took on the Falmouth Road Race!: 
Fifteen dedicated athletes competed in the Falmouth Road Race in MA, raising over $60,000. 

15 Nephletes Competed in the NYC Triathlon!
Twelve extreme athletes competed in the triathlon in NYC, raising over $23,000.  Click the link to view their stories!

First ever team of Nephletes completes the 2012 Chicago Half Marathon!
Thank you to the Nephletes who raised over $8,000 in honor of team Will (Diaz) this July in our first-ever marathon participation in Chicago. Great job! To read more, click here!

Team NephCure Philly runs the Philadelphia Marathon!
Seven Nephletes ran the 2011 Philadelphia full or half marathon on November 20, 2011, raising over $3,000 for the cause and raising awareness in the City of Brotherly Love.  Congratulations to our amazing athletes!

Rob Koonz completed the 2011 Ironman Arizona
On November 20, 2011, Rob completed the prestigious and grueling Ironman Arizona in honor of his son, Grayson, who was diagnosed with FSGS in the fall of 2011.  Rob said of his efforts, Ironman is a true test of endurance.  And while my son will not be racing, his race against FSGS is far more important than mine."  Rob raised just under $17,000. 

Frances Velez in the NYC Marathon 
An adult patient, Frances Velez competed for the third time in the NYC Marathon on November 6, 2011, this year in honor of NephCure and thousands of others affected by FSGS and Nephrotic Syndrome.  Frances' hopes to raise awareness both in her home state of Virginia and in New York. 

2nd Annual Colin Mackay Mad Scot Trail Ride 
Starting and finishing in Jim Thorpe on October 9, nestled in the Pocono mountains, ride along the scenic Lehigh River on a fine gravel and hardpack trail as early autumn settles over the valley. In a ride organized by friends of Colin MacKay, riders can create their own distance and turn around at any point, or ride all the way to White Haven and back for a 52 mile route. Once on the main trail, riders will cross only one road!  It doesn't get much better than that. This ride is held in honor of Colin Mackay, who suffers from Focal Segmental Glomerulosclerosis (FSGS).

Team New England Ran the Falmouth Road Race
Ten MA-based Nephletes laced up for the third year as our NephCure team in the Falmouth Road Race on August 14, 2011, raising over $70,000!

Team NephCure competes in the Nautica NYC Triathlon
A super squad of 14 triathletes will compete in honor of 14 families affected by FSGS and Nephrotic Syndrome in the Nautica NYC Triathlon.  Follow their progress by clicking here.

Team Trenk DiPasquale runs the Rutgers Half Marathon for Matthew
Ross Switkes with a team of his friends and colleagues from Trenk DiPasquale ran the Rutgers University Half Marathon in New Brunswick, NJ on April 17, 2011. They  participated in honor of Matthew Levine and raised over $4,000 in funds for better treatment, a cause and a cure for Nephrotic Syndrome.   

Steve Shatkin runs the LA Marathon for Andrew
Steve Shatkin ran the LA Marathon on Sunday, March 20 for his nephew, Andrew, and says of his efforts, "Long after the marathoners have gone home, tended to their wounds and touted their accomplishments, the battle with Nephrotic Syndrome continues," says Steve.  "It continues for the parents, sisters, brothers, grandparents, aunts, uncles and friends of anyone that has the disease.  There's no finish line, no fan fare and no medal to hang around your neck. But there is hope."  Steve ran for his nephew, Andrew Stubblefield, in hopes that, "he, or any other child, will no longer have to suffer with Nephrotic Syndrome!"

Jane Modes runs the Disney Princess Half Marathon
Jane Modes ran the Disney 5K and Disney Princess Half Marathon on February 26 & 27 in honor of her sister, Molly Modes, and thousands of others battling FSGS and Nephrotic Syndrome.  Jane raised over $3400 for NephCure and finished in the top 20!

Tour de NephCure Trail Ride in honor of Colin Mackay
Organizer and mountain biking enthusiast Kevin Horio created a 52-mile trail ride starting at Jim Thorpe, PA in honor of his friend, Colin Mackay, and patients battling FSGS and Nephrotic Syndrome.  The ride was held November 20, 2010 and raised over $1,000 for NephCure.