Advocacy Tools & Tips

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Below are some resources to help you most effectively advocate for Nephrotic Syndrome and FSGS.

Capitol Hill

Communicating with Your Elected Officials

Tips for Writing to Members of Congress

Tips for Meeting with Members of Congress

Effective Town Hall Meeting Tips

Thank You Letter Template

Frequently Asked Questions From Congress

Fact Sheets

About the NephCure Foundation

Nephrotic Syndrome Facts

FSGS Facts

Athletes with NS or FSGS or learn more about our ambassadors here

If you have additional questions, please contact Miriam Long at mlong@nephcure.org or at 610.540.0186, extension 10.