Suggested Resources

Support Groups:

NephCure’s NephSpace: http://www.nephcure.org/nephspace

Nephkids: http://cybernephrology.ualberta.ca/nephkids/  

Kidcomm: http://www.kidcomm.org/  

Find a Team NephCure in your area:
NephCure Teams

Social support for children:

• The Children's Kidney Foundation:http://www.thechildrenskidneyfoundation.org/
• Frost Valley YMCA Summer Camp: A Retreat for Children with Kidney Disease
• Camp Sunshine: A Retreat for Children with Life-Threatening Illnesses and their Families
• The Ruth Gottscho Kidney Foundation: http://gottschokidney.org/

 Find resources in the state you live in... click here
 

General Information:

The National Kidney Disease Education Program (NKDEP):
Has a lot of information that is informative for patients.
http://www.nkdep.nih.gov/ 

Glomerular Filtration Rate: 60 or higher is in the normal range.
http://www.nkdep.nih.gov/patients/kidney_disease_testing.htm
http://www.nkdep.nih.gov/resources/ExplainingGFR.htm  

NKDEP provides a calculator for professionals to use. Share it with your doctor and/or nephrologist if they don’t know about it already.
http://www.nkdep.nih.gov/professionals/gfr_calculators/  

Kidney transplant:
1-800-USC-CARE and ask for information about the Kidney Transplant Program.
Children’s Organ Transplant Association http://www.cota.org/  

Sources of financial help for patients:

• American Kidney Fund: http://www.kidneyfund.org/patient-grants/
• National Kidney Foundation: www.Kidney.org
  NIDDK: http://kidney.niddk.nih.gov/kudiseases/pubs/financialhelp/                                                          
• Patient Advocate Foundation: http://www.patientadvocate.org/ - resources for copays, coinsurance, and medical debt.                                                                                                
• NORD Patient Assistance Program: http://www.rarediseases.org/patients-and-families/patient-assistance