Our Stories

Jalen's Story

In 2003, Jalen was diagnosed with Minimal Change Disease when he was just two-years old. From that day on, our lives changed entirely.

At first, we started to notice that at certain times he would get puffy around his eyes.  We went to the pediatrician a few times and were told the puffiness was due to allergies. Finally, over the course of several months and misdiagnoses, Jalen was diagnosed with MCD.

Jalen has had several relapses throughout the years and has been on Prednisone for most of his life. He was treated with Cytoxan, but it did not work for him. Cyclosporine, a miracle drug (or at least we thought it was), kept him in remission for almost two years; however, a routine b