Ask the Expert Webinar – Transitioning from a Pediatric to an Adult Nephrologist May 16, 2016 by Kelly Helm Changing doctors and medical teams even under the best of conditions can be stressful. After spending much time and going through many struggles with a Pediatric Nephrologist can make it that much more difficult to even think about finding and switching to an Adult Nephrologist where no doubt things will be different! Join us on Tuesday, May 24 from 8-9 PM EST for the next Ask the Expert Webinar: Transitioning from a Pediatric Nephrologist to an Adult Nephrologist. Special Guest: Dr. Elaine Ku Pediatric and Adult Nephrologist University of California San Francisco Register Here: https://attendee.gotowebinar.com/register/6103535652235433985
Your Advocacy at Work – New Funding for FSGS Research May 12, 2016 by Kylie Karley Since 2014, NKI and our dedicated community of patient advocates have been encouraging Congress to include FSGS on the Department of Defense’s list of conditions eligible for research funding through the Peer Reviewed Medical Research Program. Learn more about these efforts here. Directly as a result of our advocacy, FSGS was included on the list in 2015 and 2016. This new stream of grant funding gives FSGS researchers access to up to $278 million in grant awards. Last year was the first year that FSGS researchers were able to submit grant applications for this new funding stream and recently, the DoD announced which of those applications were recommended for funding. We are thrilled that five FSGS projects made the list! FY 2015 Discovery Award Suzie Pun – University of Washington FY 2015 Investigator-Initiated Research Award – Partnering PI Option Ali Gharavi – Columbia University Medical Center Simone Sanna-Cherchi – Columbia University Medical Center Suzie Pun – University of Washington Stuart Shankland – University of Washington We can’t wait to tell you more about the winning projects for 2015 and look forward to even more success in the 2016 cycle. In order to ensure that FSGS continues to be included as an eligible condition each year, we must continue to advocate. Stay tuned for more information about what you can do to help!